User Profile

Jules, reading

Jules@wyrms.de

Joined 3 years, 2 months ago

Hi I'm Jules,

I read a lot of disability related more academic stuff, anarchism and whatever else looks interesting or helpful. And then mostly queer fantasy, science fiction / speculative fiction to relax.

I read mostly e-books for accessibility reasons. So if you're interested in a book on my lists, just send me a DM. I can point you to sources or just send it over.

I'm also @queering_space@weirder.earth

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2025 Reading Goal

25% complete! Jules, reading has read 3 of 12 books.

Devon Price: Unmasking Autism (Hardcover, 2022, Harmony Books)

A deep dive into the spectrum of Autistic experience and the phenomenon of masked Autism, …

For all the effort that maskers put into hiding our neurodiversity, it often blows up in our faces. Inauthenticity and a forced-seeming social performance rubs neurotypicals the wrong way. In a landmark study into the psychology of perceived “creepiness,” psychologists McAndrew and Koehnke (2016) asked 1,341 respondents to answer questions about which personal qualities and behaviors they associated with “creepy” people, and used statistical factor analysis to develop a measurable “creepiness” factor. The creepiness factor they developed included the following traits: a person having awkward, unpredictable behavior, an unnatural-looking smile, laughter that occurred at “unnatural” times, speaking for too long about a single topic, and not knowing when to end a conversation.[30] When Autistic people attempt to socialize and bond with others in an affable, enthusiastic way, these are often the very traits we embody. Even as we try to put the neurotypical people around us at ease by smiling, keeping the conversation moving, and staying present, we might be seen as scary or unsettling.

The solution, then, is to stop hiding and pretending to be something we’re not. Instead of straining (and failing) to imitate NT people, we can become radically visible. Sasson’s research found that when participants were told they were interacting with an Autistic person, their biases against us disappeared. Suddenly they liked their slightly awkward conversation partner, and expressed interest in getting to know them. Having an explanation for the Autistic person’s oddness helped the creeped-out feeling go away. Follow-up research by Sasson and Morrison (2019) confirmed that when neurotypical people know that they’re meeting an Autistic person, first impressions of them are far more positive, and after the interaction neurotypicals express more interest in learning about Autism.[32] Radical visibility has its rewards.

Unmasking Autism by  (Page 167 - 168)

Devon Price: Unmasking Autism (Hardcover, 2022, Harmony Books)

A deep dive into the spectrum of Autistic experience and the phenomenon of masked Autism, …

But we don’t always have to rely on subtle approaches that appeal to neurotypical sensibilities. We can proudly, visibly do our own things in our own ways, and share the shortcuts and systems that make our lives possible. We can stim with big, intense gestures, wear large, obvious ear defenders, and ask for help when we need it. The more honest we are about the challenges we’re facing, the harder it will be for neurotypical people to ignore our voices, or the fact that most public spaces are still incredibly inaccessible. Being more radically visible is also an exercise in unlearning shame.

Unmasking Autism by  (Page 164)

Devon Price: Unmasking Autism (Hardcover, 2022, Harmony Books)

A deep dive into the spectrum of Autistic experience and the phenomenon of masked Autism, …

“I’ll look at everything on the menu online,” she says, “and figure out what I can eat that is not going to make my anorexia or sensory issues freak out. I’ll also practice ordering it out loud, especially if the name for the dish is in another language, and I don’t know how to pronounce it.” I don’t know any neurotypical people who sit at home googling how to pronounce words like bouillabaisse or injera so they don’t seem “weird” at a restaurant. But for Autistics, this level of scripting and pre-planning is normal.

Unmasking Autism by  (Page 163)

Devon Price: Unmasking Autism (Hardcover, 2022, Harmony Books)

A deep dive into the spectrum of Autistic experience and the phenomenon of masked Autism, …

Many neurodiverse people suffer from Autistic inertia.[24] The same heightened focus that makes us so good at studying our special interests for hours also makes it challenging for us to get off the couch and attend to the overflowing trash. To an external, neurotypical observer, it doesn’t look like we’re struggling. It just looks like we’re being “lazy.” Almost every neurodiverse person I’ve spoken to has been deemed “lazy” numerous times by exasperated parents, teachers, and friends. People see us sitting frozen, incapable of taking action, and assume it’s because we don’t care or lack willpower.[25] Then they admonish us for being apathetic and unreliable, which leaves us feeling even more paralyzed by anxiety. Neurotypicals also tend to assume we know how to complete a chore or task without instructing us in exactly what it entails, not understanding that we can’t intuit our way through unstated expectations.

Unmasking Autism by  (Page 162)

Devon Price: Unmasking Autism (Hardcover, 2022, Harmony Books)

A deep dive into the spectrum of Autistic experience and the phenomenon of masked Autism, …

We’re not single-minded Marios, running across a side-scrolling level to rescue Princess Peach. We’re more like the protagonist of the video game Katamari Damacy, a freaky, colorful demigod who rolls an ever-growing ball of objects around, each step forward attracting more random items into his ball’s expanding gravitational field until it engulfs the universe. We don’t complete discrete projects. We build worlds.

Unmasking Autism by  (Page 160)

Devon Price: Unmasking Autism (Hardcover, 2022, Harmony Books)

A deep dive into the spectrum of Autistic experience and the phenomenon of masked Autism, …

Experimental research shows that many Autistic people have trouble ignoring visual “noise,” to the degree it really disrupts our processing.[2] Clutter can erode our focus, making it hard for us to think clearly or regulate our emotions. A study of Autistic schoolchildren found that many had trouble paying attention in classrooms where the walls were covered in distracting, bright posters, and the shelves were stuffed with books and toys.[3] Most children’s spaces are very busy and bright, despite how negatively this impacts Autistic kids’ processing.

Unmasking Autism by  (Page 152)

Devon Price: Unmasking Autism (Hardcover, 2022, Harmony Books)

A deep dive into the spectrum of Autistic experience and the phenomenon of masked Autism, …

When a person from a highly stigmatized group absorbs and believes some of the negative stereotypes applied to their group, they’re suffering from what researchers call self-stigma. Self-stigma is heavy; people high in it experience reduced self-esteem and see themselves as less capable than other people, and they’re often afraid to seek help.[8] Psychologists have studied how to reduce self-stigma in people with mental disorders like depression, anxiety, and schizophrenia for decades; however, there is essentially no research into how to reduce self-stigma in Autistics. What little data does exist is on helping the abled family members of Autistic children to feel less shame about being related to someone disabled.

Unmasking Autism by  (Page 131)

Devon Price: Unmasking Autism (Hardcover, 2022, Harmony Books)

A deep dive into the spectrum of Autistic experience and the phenomenon of masked Autism, …

Masked Autistics are also particularly likely to engage in the trauma response that therapist Pete Walker describes as “fawning.”[53] Coping with stress doesn’t always come down to fight versus flight; fawning is a response designed to pacify anyone who poses a threat. And to masked Autistics, social threat is just about everywhere. “Fawn types avoid emotional investment and potential disappointment by barely showing themselves,” Walker writes, “by hiding behind their helpful personas, over-listening, over-eliciting or overdoing for the other.

Unmasking Autism by  (Page 123)

Devon Price: Unmasking Autism (Hardcover, 2022, Harmony Books)

A deep dive into the spectrum of Autistic experience and the phenomenon of masked Autism, …

Alexithymia may arise, in part, because Autistics aren’t given the tools to understand how emotions feel in our bodies, and because we are taught to prioritize others’ feelings above our own. Growing up, we’re told how neurotypical emotions look and feel. We’re encouraged to track other people for signs of discomfort or disapproval, so we can change our actions and become more pleasant or compliant. Our own facial expressions, nonverbal signals, and perceptions of our bodies and surroundings are different, and neurotypicals frequently ignore them. So when we’re upset or uncomfortable, we often fail to recognize it until we’re nearly on the verge of a complete meltdown.

Unmasking Autism by  (Page 116)

Devon Price: Unmasking Autism (Hardcover, 2022, Harmony Books)

A deep dive into the spectrum of Autistic experience and the phenomenon of masked Autism, …

Dissociation is also a means of controlling the social and sensory data we’re taking in, ignoring inputs that have become too intense. For example, when there are too many people around, my friend Angel says he goes away into “Angel World” in his head, and everyone around him becomes blurry. He has some relatives that he has never seen the faces of, because he’s only ever met them at big family gatherings where everyone blends into a sea of muddy, vague shapes. When he’s dissociating, he can still go through the motions of eating, bathing, and walking around, but mentally he’s not really there.

Unmasking Autism by  (Page 113)

Devon Price: Unmasking Autism (Hardcover, 2022, Harmony Books)

A deep dive into the spectrum of Autistic experience and the phenomenon of masked Autism, …

Content warning ED

Devon Price: Unmasking Autism (Hardcover, 2022, Harmony Books)

A deep dive into the spectrum of Autistic experience and the phenomenon of masked Autism, …

Since a growing body of research suggests cognitive behavioral therapy (CBT) approaches don’t work as well for Autistics as they do for neurotypicals,[13] CBT-based addiction treatment might not be a good fit—at least not without modifications. One exploratory clinical study published in 2019 did find that when mental health providers were taught about how to communicate effectively with Autistic patients (a skill set most providers lack), the cognitive behavioral therapy they offered did help Autistic adults with their substance use disorders.

Often the fears that CBT therapists train their patients to view as irrational (if I say the wrong thing, I’ll lose my job and wind up on the street!) are completely rational for Autistics, and rooted in genuine experience.

Unmasking Autism by  (Page 109)

Devon Price: Unmasking Autism (Hardcover, 2022, Harmony Books)

A deep dive into the spectrum of Autistic experience and the phenomenon of masked Autism, …

I’ve already described how the bottom-up nature of Autistic sensory processing leads to us being overstimulated and easily distracted by things like ambient noise and visual clutter. There is an additional neurological feature of Autism that contributes to our sensory issues and meltdowns in a significant way—our difficulty adjusting to a stimulus over time.

Neurotypical brains engage in sensory adaptation and habituation: the longer they are in the presence of a sound, smell, texture, or visual cue, the more their brain learns to ignore it, and allow it to fade into the background. Their neurons become less likely to be activated by a cue the longer they are around it. The exact opposite is true for Autistic people: the longer we are around a stimulus, the more it bothers us.

When we’re overloaded, we become irritable, or filled with despair; we might even start self-harming to get an endorphin rush or ground ourselves. Our bodies are visibly tense with anxiety, and we’re difficult to engage with during these times. What non-Autistic folks often don’t realize is that Autistic people experience intense sensory input as if it were physical pain.

Unmasking Autism by  (Page 105)

Devon Price: Unmasking Autism (Hardcover, 2022, Harmony Books)

A deep dive into the spectrum of Autistic experience and the phenomenon of masked Autism, …

To maintain their masks and compensate for the challenges they’re facing, many Autistic people fall back on an array of destructive and compulsive coping mechanisms, including substance abuse, calorie restriction, excessive exercise, emotional codependency, and even joining cults. I think if we want to really confront the role the mask has played in our lives and work on parting with it, it’s important we face just how unsustainable and costly masking has been.

Masked Autistic people fall back on a variety of flawed strategies in order to relax, mute our most disruptive behaviors, or conform with neurotypical standards. Some use compulsive exercise or calorie restriction to make their jittery, unruly Autistic bodies settle down or shrink into a more convenient shape. Some self-harm in order to regulate their anxiety or sensory overwhelm. Others become so lonesome they seek out approval from high-control groups and cults, or find themselves trapped in abusive domestic relationships they are unable to escape. Even many mental health professionals are unaware that these disorders and self-destructive behaviors are highly comorbid with Autism.

Unmasking Autism by  (Page 100 - 101)

Devon Price: Unmasking Autism (Hardcover, 2022, Harmony Books)

A deep dive into the spectrum of Autistic experience and the phenomenon of masked Autism, …

For many masked Autistics, the best way to camouflage a socially undesirable quality is to rebound into the complete opposite direction, and overcorrect for anything neurotypical people and institutions have taught us to hate about ourselves. An Autistic person who was mocked for being needy and intense as a child may camouflage as hyperindependent and emotionally avoidant, for example. On the flip side, an Autistic person who has repeatedly been told they are selfish and robotic might instead wear a mask of helpful friendliness, and become a compulsive people-pleaser.

Unmasking Autism by  (Page 97)