User Profile

Jules, reading

Jules@wyrms.de

Joined 3 years, 5 months ago

Hi I'm Jules,

I read a lot of disability related more academic stuff, anarchism and whatever else looks interesting or helpful. And then mostly queer fantasy, science fiction / speculative fiction to relax.

I read mostly e-books for accessibility reasons. So if you're interested in a book on my lists, just send me a DM. I can point you to sources or just send it over.

I'm also @queering_space@weirder.earth

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Jules, reading's books

Currently Reading (View all 6)

2025 Reading Goal

41% complete! Jules, reading has read 5 of 12 books.

Devon Price: Unmasking Autism (Hardcover, 2022, Harmony Books)

A deep dive into the spectrum of Autistic experience and the phenomenon of masked Autism, …

I think for most masked Autistic people, there are key moments in childhood or adolescence where we learn we are embarrassing or wrong. We say the wrong thing, misread a situation, or fail to play along with a neurotypical joke, and our difference is suddenly laid bare for all to see. Neurotypical people may not know we’re disabled, but they identify in us some key flaw that is associated with disability: we’re childish, or bitter, self-absorbed, or too “angry,” or maybe we’re just awkward and make people cringe. Avoiding being seen in these ways becomes our core motivation in life, each day a battle between the heavy armor we wear and the embarrassing characteristics that armor was designed to cover up.

Unmasking Autism by  (Page 86)

Devon Price: Unmasking Autism (Hardcover, 2022, Harmony Books)

A deep dive into the spectrum of Autistic experience and the phenomenon of masked Autism, …

A number of the Autistic people I interviewed for this book are also ADHDers. So are many of the writers, mental health providers, and activists I quote. Within the Autistic self-advocacy community, people with ADHD are usually treated as honorary members by default. And the more we learn about the two neurotypes, the less they seem like distinct categories. They are, in every sense, sibling disabilities, two highly similar groups who belong in community with one another.

Unmasking Autism by  (Page 75)

Devon Price: Unmasking Autism (Hardcover, 2022, Harmony Books)

A deep dive into the spectrum of Autistic experience and the phenomenon of masked Autism, …

Autism can also look a lot like an anxiety disorder. Most of us are anxious nearly every moment we’re around other people, after all. Overstimulating, unpredictable surroundings will tend to activate our fight-or-flight response. The rituals and repetitive behaviors we develop to cope with stress can look a lot like Obsessive-Compulsive Disorder. Autistic burnout presents very much like a major depressive episode. All too often, these negative mental health consequences of masking are what a therapist recognizes, rather than the untreated disability that’s caused it.

Unmasking Autism by  (Page 70)

Devon Price: Unmasking Autism (Hardcover, 2022, Harmony Books)

A deep dive into the spectrum of Autistic experience and the phenomenon of masked Autism, …

Clinical studies show Daan’s experiences are far from abnormal. Therapy that is focused on battling “irrational beliefs,” such as cognitive behavioral therapy (CBT), doesn’t work as well on Autistic people as it does on neurotypicals.[72] One reason for that is many of the fears and inhibitions of Autistic people are often entirely reasonable, and rooted in a lifetime of painful experiences. We tend to be pretty rational people, and many of us are already inclined to analyze our thoughts and feelings very closely (sometimes excessively so).

Unmasking Autism by  (Page 70)

Devon Price: Unmasking Autism (Hardcover, 2022, Harmony Books)

A deep dive into the spectrum of Autistic experience and the phenomenon of masked Autism, …

Would a large, hairy man who loves collecting Funkopop toys but also enjoys MMA fighting be considered youthful? Or would that label instead apply to a petite woman who wears dresses and speaks in a high-pitched voice about her love of horses? All too often, the difference between who gets perceived as an innocent, shy Autistic and who gets viewed as creepy, awkward, and obviously disabled is more a function of things like race, gender, and body size than it is any innate difference in personality or behavior. There is no objective definition of what makes someone moody or a social chameleon, either. It’s easier to socially camouflage if you’re the kind of person society doesn’t view with much suspicion in the first place.

(...)

This cluster of traits is commonly called “female Autism,” but that label ignores the fact that a large percentage of Autistic people are transgender and gender nonconforming.[13] I’m transgender and Autistic, and find that my experiences don’t fully slide into either the “female” or “male” Autism narratives. Like Bobbi, I was raised and socialized as a bit of an odd freak more than I was a “boy” or a “girl.” Neither girls nor boys related to me as one of their own, and I didn’t identify with them, either.

Unmasking Autism by  (Page 54)

Devon Price: Unmasking Autism (Hardcover, 2022, Harmony Books)

A deep dive into the spectrum of Autistic experience and the phenomenon of masked Autism, …

Though many of us experience sensory issues, anxiety, meltdowns, and debilitating mental health symptoms, we push as much of that misery into the private realm as possible. Our elaborate veils of coping mechanisms and camouflaging can create the illusion we don’t need help. Often this comes at the expense of giving up on the areas of life where we might need assistance.

Unmasking Autism by  (Page 39)

Devon Price: Unmasking Autism (Hardcover, 2022, Harmony Books)

A deep dive into the spectrum of Autistic experience and the phenomenon of masked Autism, …

Allistic folks, in contrast, make sense of the world in a very top-down fashion. They’ll enter a new environment, such as an unfamiliar restaurant, take a quick look around, and jump to reasonable conclusions about how to order, where to sit, what kind of service to expect, and even how loudly they should talk. Their brains will immediately begin to filter through sounds, lights, and other stimuli, and adjust accordingly. They might notice a clanging pinball machine in the corner for a moment, for instance, but soon habituate to it, and become able to ignore it. When the waiter approaches, they probably can chat without much difficulty, even if something unexpected gets said or the item they planned to order is sold out. They don’t rely on memorized conversational scripts, and they don’t have to carefully parse every single piece of data they encounter to make sense of it. They can wing it.

Autistic people, on the flip side, don’t rely on knee-jerk assumptions or quick mental shortcuts to make our decisions. We process each element of our environment separately, and intentionally, taking very little for granted. If we’ve never been in a particular restaurant before, we may be slow to make sense of its layout or figure out how ordering works. We’ll need really clear-cut indications of whether it’s the kind of place where you sit down and get table service, or if you’re supposed to go to a counter to ask for what you like. (Many of us try to camouflage this fact by doing extensive research on a restaurant before setting foot inside.) Every single light, laugh, and smell in the place is taken in individually by our sensory system, rather than blended into a cohesive whole. To cope with unpredictability, we analyze our experiences for patterns, and memorize rule sets: if the waiter says X, I reply with Y. When something unexpected happens, we have to carefully sort out how to respond. Too much change may cause us to become really exhausted, or to freak out.

Unmasking Autism by  (Page 25 - 26)

Devon Price: Unmasking Autism (Hardcover, 2022, Harmony Books)

A deep dive into the spectrum of Autistic experience and the phenomenon of masked Autism, …

In Autistic brains, however, researchers have found that some regions remain hyperconnected throughout the life span, whereas other regions may be underconnected (relatively speaking). It is difficult to sum up these connectivity patterns because, as neurobiologists at the Weizmann Institute of Science have found, every Autistic brain exhibits a different connectivity pattern. Our brain wiring appears to actually be more diverse than the wiring of neurotypical brains, which researchers believe have a consistent pruning pattern.

Unmasking Autism by  (Page 22)

Devon Price: Unmasking Autism (Hardcover, 2022, Harmony Books)

A deep dive into the spectrum of Autistic experience and the phenomenon of masked Autism, …

Autistic people have differences in the development of their anterior cingulate cortex,[14] a part of the brain that helps regulate attention, decision making, impulse control, and emotional processing. Throughout our brains, Autistic people have delayed and reduced development of Von Economo neurons (or VENs), brain cells that help with rapid, intuitive processing of complex situations.[15] Similarly, Autistic brains differ from allistic brains in how excitable our neurons are.[16] To put it in very simple terms, our neurons activate easily, and don’t discriminate as readily between a “nuisance variable” that our brains might wish to ignore (for example, a dripping faucet in another room) and a crucial piece of data that deserves a ton of our attention (for example, a loved one beginning to quietly cry in the other room). This means we can both be easily distracted by a small stimulus and miss a large meaningful one.

Unmasking Autism by  (Page 22)

Devon Price: Unmasking Autism (Hardcover, 2022, Harmony Books)

A deep dive into the spectrum of Autistic experience and the phenomenon of masked Autism, …

One of the coaches and disability advocates whose work has helped to inform this book, Heather R. Morgan, stressed to me that before we examine our masks and learn to take them off, we must first recognize that the version of ourselves we’ve been hiding from the world is somebody we can trust.

“I think it can be risky for people to try to think about where their mask comes from and think about taking the mask off before they first know that there’s somebody safe underneath of it,” she says. “Even talking about unmasking if we don’t have a safe place to land can be terrifying."

Unmasking Autism by  (Page 15)

Devon Price: Unmasking Autism (Hardcover, 2022, Harmony Books)

A deep dive into the spectrum of Autistic experience and the phenomenon of masked Autism, …

Refusing to perform neurotypicality is a revolutionary act of disability justice. It’s also a radical act of self-love. But in order for Autistic people to take our masks off and show our real, authentically disabled selves to the world, we first have to feel safe enough to get reacquainted with who we really are. Developing self-trust and self-compassion is a whole journey unto itself.

Unmasking Autism by  (Page 13)

Devon Price: Unmasking Autism (Hardcover, 2022, Harmony Books)

A deep dive into the spectrum of Autistic experience and the phenomenon of masked Autism, …

When an Autistic person is not given resources or access to self-knowledge, and when they’re told their stigmatized traits are just signs that they’re a disruptive, overly sensitive, or annoying kid, they have no choice but to develop a neurotypical façade. Maintaining that neurotypical mask feels deeply inauthentic and it’s extremely exhausting to maintain.[5] It’s also not necessarily a conscious choice. Masking is a state of exclusion forced onto us from the outside.

Unmasking Autism by  (Page 10)